秒词邦

原文：

　　这一年，冯锦源经历了哪些重要的人生阶段？如今他又如何看待生活？ 澎湃新闻记者 陈斯斯 张呈君（03：49）

　　“我自年轻时就重视智慧，也愿意学习，虽然身体瘫痪，依然工作挣钱。但是我发现随着年龄上升，原来可以依靠的技艺渐渐变得不可靠了。我感觉自己在走下坡路，好像日暮的黄昏，我该怎么办？”

　　这是“渐冻人”冯锦源向AI抛出的问题。

　　过去39年，全身上下只有两根手指和一双眼睛能活动的他，考取日语一级证书，翻译过20部作品，完成超百万字的剧本，还设计了多款游戏可在网络下载。站在人工智能的风口，他也积极拥抱最新的技术，尝试用AI写小说、与AI对话，讨论有哲学意味的话题。

　冯锦源制作的游戏预告片。本文图片均为 澎湃新闻记者 陈斯斯 摄

　　2024年6月21日是第二十四个“世界渐冻人日”，也是澎湃新闻（www.thepaper.cn）记者跟踪报道冯锦源的第八年。

　　过去一年中，他生活中最大的变化，是90多岁的奶奶因病去世。6年前，冯锦源的爷爷也因身患癌症去世。此前人生时光中，与之相伴最多的两位亲人就此作别，也让冯锦源对生死有了更多思考，甚至关注起当下热议的AI复活。

　　如今，他从原本住的百来平方米的大房子搬到一房一厅的小房子，由家政阿姨照顾日常起居。“我的父母也老了，正是因为不想让年迈体弱的父母过度担忧自己的病情，所以选择一个人生活。”冯锦源说。

　冯锦源2024年4月搬入的新住处，一房一厅，他和家政阿姨一起居住。

　　担忧与困惑之下，学会顺其自然

　　位于上海市中兴路的一处高层建筑，就是冯锦源现在的家，大约三四十平方米，租金5000元一个月，由他和妈妈一起承担。每天24小时，与其共同生活的是家政阿姨。他的妈妈住在附近，时常来探望，爸爸则患有帕金森病，已无法下地行走，父子俩见面的机会越来越少。

　　冯锦源的作息很规律：早上5点多醒来，躺在床上想想怎样安排一天的生活和工作，也常常胡思乱想、思考些人生哲学。直到7点多，阿姨扶他从床上起来，帮助他吃好早餐，开启电脑，一个渐冻人的“一天”就这样开始了。

　　一张靠背椅、一台电脑桌，冯锦源人生的大部分时间，都在一平方米空间里度过，

　　他曾说自己是“从地狱里爬出来的人”。出生后不久，冯锦源就腿脚无力，父母带他四处求医，“无力感”逐渐从双腿扩展到双臂、双手，再到头部，全身上下能活动的只有左手两根手指以及一双眼睛。

　　但冯锦源却一次次创造生命奇迹。他曾考取日语一级证书、翻译过约20部作品；从2018年起，他还尝试写游戏剧本、设计游戏，一些剧本如《幽铃兰》、《山茶列车》等已经成为游戏产品，正式对外发布。

　冯锦源与人工智能聊哲学话题。

　　近年来，冯锦源时常感慨人工智能对其翻译工作的“打击”，“现在，翻译的活也不好找，一年来只翻译了2本日语社科类书籍。”

　　除了翻译，他最大的兴趣爱好是游戏创作，但似乎也遇到了瓶颈。2019年到2021年期间，他创作了一部近百万字的游戏剧本《暮海聆涛》，目前仍然在寻找投资方，希望可以完成后续的美术、配音等一系列后期制作。

　　“找投资是最难的一件事，只有资金注入，才可以让一个游戏剧本最终成为一个游戏产品，光靠我一个人，是无法做到的。”冯锦源说，“在《暮海聆涛》找到投资方前，我花了半年多时间尝试制作了个游戏demo，如同游戏的试玩版，时长半个小时，电脑程序由我来设计，讲述了故事的开头。”

　一张靠背椅、一台电脑桌，冯锦源的每一天几乎都这样度过。 

　　对冯锦源来说，在互联网上接触最新的科技，是他生活的最大乐趣和动力，近年来，他还持续关注AI的发展，尝试着用人工智能写游戏剧本、写悬疑小说等，甚至与AI展开对话，讨论有关疾病、生死、生存的话题。

　　“能详细解释下‘人类处于一个永恒的自我与理想自我的张力’之中吗？”当冯锦源把这个问题抛给AI时，他得到的答案是：“当然可以。”他曾读过丹麦哲学家索伦·克尔凯郭尔的《致死的疾病》，书中探讨了个体生存状态中的绝望形态，以及如何从绝望中解脱出来获得真正的信仰。AI给他的答案是：“要解决这种张力和绝望，人类需要通过信仰来认同自己的存在。信仰是一种超越理性的信念，它可以帮助人们理解和接受自己在现实和理想之间的张力，从而克服绝望。”

　　他还曾问AI：“我自年轻时就重视智慧，也愿意学习，虽然身体瘫痪，依然工作挣钱。但是我发现随着年龄的上升，原来可以依靠的技艺渐渐变得不可靠了。我感觉自己在走下坡路，好像日暮的黄昏，我该怎么办？”这个问题似乎也是他一年来的最大的忧虑和困惑。AI告诉他：“不要为明天忧虑，一天的难处一天担当就够了。”

　　这样有些哲学意味的对话时常进行，冯锦源感慨道：“跟电脑聊哲学，脑子就会跟着一起动起来，这样至少会让我思考，还能回去多读一些书，比胡思乱想好。”

　　他坦言：“过去几年来，始终不相信命运的安排，觉得自己的人生不应该是这样，我相信一个人可以改变命运。如今，我学会了顺其自然，不再为自己设定一个非完成不可的目标，约束自己去努力实现。现在我会把更多的时间，花在感恩生命中的每一个小细节，以及每天我可以看到什么样的风景、与哪些人互动，每天我做了哪些事，有什么样的收获上。”

　　奶奶离世后，拒绝和母亲共同生活

　　对冯锦源来说，过去一年来，人生最大的变化，莫过于奶奶的离世。

　　2024年4月中旬，他从原来与奶奶一同租住的苏州河边的高层住宅，搬到中兴路的高楼。这里距离妈妈的住处更近一些，也是妈妈帮他选的房子。如今，70岁的妈妈每周保持2-3次的频率来探望他。

　　此前6年多的时间里，他一直和年迈的奶奶生活在一起。奶奶有些耳背，很多话听不进去，与冯锦源沟通的时间也不算多，但她一直都很关心他。而就在2024年2月23日，93岁高龄的奶奶因病去世了。

　　“今年元旦节后，奶奶就越来越觉得没力气，也吃不下饭。2月初，家人就把她送去住院了，那一次之后，我也就再也没有看到过她了。”冯锦源说，“奶奶是因为年龄原因，脏器衰竭走的，她一走，我很舍不得。以前奶奶在家里，我还要关心下她的血压、血糖、血氧等指标，现在突然人不在了，总觉得自己少了很多事情，心里空落落的。”

　　由于行动不便，冯锦源没能去医院见奶奶最后一面。奶奶去世的那一天，他给自己买了个麦当劳巨无霸汉堡。“奶奶很喜欢吃，我也买来吃，为了纪念她。”他说，在奶奶80岁以后，自己就一直在网上下单给奶奶买汉堡吃，“小时候，奶奶给我买汉堡吃，而她老了，就我买给她吃，没想到她那么喜欢吃，还一直吃了那么多年。”

　　在冯锦源的记忆中，他的成长时光更多与爷爷奶奶生活在一起，父亲早年因工作在外，很少能在身边陪伴，母亲则时常来探望。2018年，爷爷因患癌症去世，冯锦源花了一年多的时间从伤痛中走出来。

　　今年奶奶去世后，冯锦源的母亲提出与他一同生活，冯锦源没有同意。“妈妈70岁了，年纪大了，如果我跟她住在一起，一旦有个小毛小痛，我们都会彼此担心对方；如果不住在一起，一些无关紧要的疼痛，我也不会告诉她，她有点小毛病，也不会告诉我，这样一来，大家都会活得更加轻松坦然一些，保持一些距离也是好的。”

　　思考AI复活亲人，感慨“渐冻人”蔡磊的伟大

　　奶奶去世后不久，冯锦源加入了一个名叫“蓝信封留守儿童关爱中心”的公益组织，成为了一名志愿者。他与一名正在读初中的留守儿童建立起了一对一的联系。

　　“他时常来消息，咨询我学习上的问题和困惑，譬如要不要考大学、该如何高效学习等。我也会把我的学习经历告诉他。”冯锦源说，这样的帮扶和奉献，让他觉得自己是一个对社会多少有些贡献的人。

　　春节前，冯锦源曾经历了一场疾病。长达三个月的褥疮，手掌般大小的伤口感染、化脓，每天持续发高烧……那段时间，他只能每天卧躺在床。手脚无法动弹的他，不能使用电脑，于是他便尝试用iPad阅读，用语音控制翻页和按键操作。三个月的时间里，他读了10多本书，涵盖了神学、文学、恐怖小说等等，其中一本书是史铁生的《我与地坛》。

　　作为同样有着瘫痪历程的写作者，冯锦源在书中读到了史铁生对生死、命运的思考，很多地方都给他带来了共鸣。“相似的心境、相似的人生，这样的阅读，让我感觉到‘温饱’，其实人生并没有那么痛苦。”

　　冯锦源透露，自己也是一名澎湃新闻的读者，时常阅读澎湃新闻的人物故事，尤其关注“AI复活亲人”以及渐冻人“蔡磊”的进展。“如果条件允许，我也想要尝试下用AI‘复活’亲人。但有时候我也在思考，这样的AI可以模仿家人的声音、外貌，但无法复制他们的心灵和思想。从这个角度思考，我其实有些抵触这样的技术。”

　　对于渐冻人“蔡磊”， 冯锦源感慨他的伟大。“他是一个很不容易的人，前半生事业那么成功，也曾付出过很多努力去达到这样的事业高度，很难想象在得知自己患病的一刹那，他是如何去接受这个现实的，毕竟这样的疾病对任何一个人来说都是很难接受的苦难。”对比自己的人生，他觉得，“我生下来没多久就知道自己得了这个病，从小到大都在接受这样的现实。或许，这样的‘接受’和‘顺应’来得更简单一些吧。”

　　让他更为之敬佩的是，蔡磊在这样的疾病条件下，仍然竭尽全力地想要造福更多相同的患者，推动人类在渐冻症诊疗领域的进步。“这仿佛是进入了一片‘寂静岭’，发现前面没有路了，面对着很深的悬崖，他仍然想着要走出一条没有人走过的路，寻找一条光明大道。他说‘要打光最后一颗子弹’，这真的是很不容易的一件事。他的妻子也同样很伟大，一直支持着丈夫，去寻找着一条光明之路。”冯锦源说。

译文：

What important life stages did Feng Jinyuan go through this year? How does he view life now? Pengpai News reporter Chen Sisi and Zhang Chengjun (03:49)

"I have been valuing wisdom and willing to learn since I was young. Although my body is paralyzed, I still work to earn money. However, I have found that as I age, the skills I used to rely on gradually become unreliable. I feel like I am going downhill, like it's dusk. What should I do?"

This is a question raised by Feng Jinyuan, a "gradually frozen person", to AI.

In the past 39 years, despite having only two fingers and one pair of eyes to move around, he has obtained a Japanese Level 1 certificate, translated 20 works, completed over a million word scripts, and designed multiple games that can be downloaded online. Standing at the forefront of artificial intelligence, he actively embraces the latest technology, attempting to write novels using AI, engage in conversations with AI, and discuss philosophical topics.

The game trailer produced by Feng Jinyuan. The pictures in this article are game trailers produced by Feng Jinyuan, captured by Chen Sisi, a journalist from The Paper. All the pictures in this article were taken by Chen Sisi, a journalist from The Paper

June 21, 2024 is the 24th "World Freezing Day" and also the eighth year for reporters from The Paper (www.thepaper. cn) to follow up on Feng Jinyuan.

The biggest change in his life over the past year was the death of his grandmother in her 90s due to illness. Six years ago, Feng Jinyuan's grandfather also passed away due to cancer. In his previous life, the two relatives who had been with him the most said goodbye, which also gave Feng Jinyuan more thoughts on life and death, and even drew attention to the current hot topic of AI resurrection.

Now, he has moved from a large house of about a hundred square meters to a small one bedroom apartment, where his daily life is taken care of by a housekeeper. "My parents are also getting old, so they chose to live alone because they didn't want their elderly and weak parents to worry too much about their condition," Feng Jinyuan said.

Feng Jinyuan moved into a new residence in April 2024, with one bedroom and one living room. He lives with his housekeeper. Feng Jinyuan moved into a new residence in April 2024, with one bedroom and one living room. He lives with his housekeeper.

Under worry and confusion, learn to let nature take its course

A high-rise building located on Zhongxing Road in Shanghai is Feng Jinyuan's current home, approximately 30-40 square meters, with a monthly rent of 5000 yuan, shared by him and his mother. 24 hours a day, living with a housekeeper. His mother lives nearby and often visits, while his father suffers from Parkinson's disease and is unable to walk on the ground. The opportunities for the father and son to meet are decreasing.

Feng Jinyuan's schedule is very regular: he wakes up at around 5 o'clock in the morning and lies in bed thinking about how to arrange his daily life and work. He also often has wild thoughts and ponders on some life philosophy. Until around 7 o'clock, the aunt helped him get up from bed, helped him have breakfast, turned on the computer, and a gradually freezing day began.

A backrest chair and a computer desk, Feng Jinyuan spent most of his life in a one square meter space,

He once said he was a person who crawled out of hell. Shortly after birth, Feng Jinyuan felt weak in his legs and feet. His parents took him to seek medical treatment everywhere, and his sense of powerlessness gradually expanded from his legs to his arms, hands, and even his head. The only thing that could move his whole body up and down was two fingers on his left hand and a pair of eyes.

But Feng Jinyuan repeatedly created miracles of life. He has obtained the Japanese Level 1 certificate and translated about 20 works; Since 2018, he has also attempted to write game scripts and design games. Some scripts, such as "You Linglan" and "Mountain Tea Train", have become game products and have been officially released to the public.

Feng Jinyuan discusses philosophical topics with artificial intelligence. Feng Jinyuan discusses philosophical topics with artificial intelligence.

In recent years, Feng Jinyuan has often lamented the "blow" of artificial intelligence to his translation work. "Nowadays, translation work is not easy to find, and he has only translated two Japanese social science books in the past year."

Apart from translation, his biggest hobby is game creation, but it seems that he has also encountered a bottleneck. During the period from 2019 to 2021, he created a nearly one million word game script called "Lingtao in the Twilight Sea", and is still looking for investors, hoping to complete a series of post production projects such as art and voice acting.

"Finding an investment is the most difficult thing. Only by injecting funds can a game script ultimately become a game product. It is impossible for me to do it alone." Feng Jinyuan said, "Before finding an investor for 'The Twilight Sea Lingtao', I spent more than half a year trying to create a game demo, just like a trial version of the game, which lasted for half an hour. I designed the computer program and told the beginning of the story."

A backchair and a computer desk, Feng Jinyuan spends almost every day like this.

For Feng Jinyuan, access to the latest technology on the Internet is the greatest pleasure and motivation of his life. In recent years, he has also continued to pay attention to the development of AI, trying to use AI to write game scripts, suspense novels, etc., and even started a dialogue with AI to discuss topics related to disease, life and death, and survival.

"Can you explain in detail that 'humanity is in a tension between an eternal self and an ideal self'?" When Feng Jinyuan asked this question to AI, the answer he received was: "Of course not." He had read the Danish philosopher Soren Kierkegaard's' Fatal Illness, 'which explored the forms of despair in an individual's survival state and how to break free from despair and obtain true faith. The answer given to him by AI is: "To solve this tension and despair, humans need to identify with their existence through faith. Faith is a belief that transcends reason and can help people understand and accept the tension between reality and ideals, thereby overcoming despair."

He once asked AI, "I have valued wisdom and am willing to learn since I was young. Although my body is paralyzed, I still work to earn money. But I have found that as I age, the skills I used to rely on gradually become unreliable. I feel like I am going downhill, like it's dusk. What should I do?" This question seems to be his biggest concern and confusion for a year. AI told him, "Don't worry about tomorrow, just take responsibility for the difficulties of the day."

This kind of philosophical dialogue often takes place, and Feng Jinyuan sighed, "Talking about philosophy with a computer will make my mind move along. At least it will make me think and I can go back and read more books, which is better than daydreaming."

He admitted, "In the past few years, I have never believed in the arrangement of fate and felt that my life should not be like this. I believe that one person can change fate. Now, I have learned to let nature take its course, no longer set an impossible goal for myself, and constrain myself to strive to achieve it. Now, I will spend more time grateful for every small detail in life, as well as what kind of scenery I can see every day, who I can interact with, what I have done every day, and what kind of gains I have."

After my grandmother passed away, she refused to live with her mother

For Feng Jinyuan, the biggest change in life over the past year has been the passing of his grandmother.

In mid April 2024, he moved from his high-rise residence by the Suzhou River that he had previously rented with his grandmother to a high-rise building on Zhongxing Road. This place is closer to his mother's residence, and it was also the house that his mother helped him choose. Nowadays, a 70 year old mother visits him 2-3 times a week.

For over 6 years, he had been living with his elderly grandmother. Grandma is a bit deaf and can't listen to many things. She doesn't spend much time communicating with Feng Jinyuan, but she has always been very concerned about him. On February 23, 2024, the 93 year old grandmother passed away due to illness.

"After this year's New Year's Day holiday, my grandmother felt increasingly powerless and unable to eat. In early February, her family sent her to the hospital, and after that time, I haven't seen her again." Feng Jinyuan said, "My grandmother left due to age and organ failure. When she left, I was reluctant to let go. Before, when my grandmother was at home, I had to pay attention to her blood pressure, blood sugar, blood oxygen and other indicators. But now that she's suddenly gone, I feel like I've lost a lot of things and my heart is empty."

Due to limited mobility, Feng Jinyuan was unable to go to the hospital to see his grandmother for the last time. On the day his grandmother passed away, he bought himself a McDonald's Big Mac. "My grandmother loves to eat, and I bought it to commemorate her." He said that since my grandmother turned 80, he has been placing orders online to buy hamburgers for her. "When I was a child, my grandmother bought hamburgers for me to eat, and when she got old, I bought them for her. I didn't expect her to love them so much and have been eating them for so many years."

In Feng Jinyuan's memory, he grew up spending more time with his grandparents. In his early years, his father was away from work and rarely accompanied him, while his mother often came to visit him. In 2018, his grandfather passed away due to cancer, and it took Feng Jinyuan over a year to recover from the pain.

After his grandmother passed away this year, Feng Jinyuan's mother proposed to live with him, but Feng Jinyuan did not agree. "My mother is 70 years old and getting older. If I live with her, once there is a small pain, we will all worry about each other. If we don't live together, I won't tell her some insignificant pain, she has some minor problems, and I won't tell her. In this way, everyone will live more easily and calmly, and maintaining some distance is also good."

Thinking about AI reviving loved ones and lamenting the greatness of "gradually freezing people" Cai Lei

Shortly after his grandmother's death, Feng Jinyuan joined a public welfare organization called "Blue Envelope Left behind Children's Care Center" and became a volunteer. He established a one-on-one relationship with a left behind child who was studying in junior high school.

"He often comes to inquire about my learning problems and confusions, such as whether to take the college entrance exam or how to study efficiently. I also share my learning experience with him," Feng Jinyuan said. Such assistance and dedication make him feel like a person who has contributed to society to some extent.

Before the Spring Festival, Feng Jinyuan experienced a disease. He had a three month long bedsore, a palm sized wound infected and purulent, and a continuous high fever every day... During that time, he could only lie in bed every day. As he was unable to move his hands and feet, he couldn't use a computer, so he tried reading on his iPad, using voice control to flip pages and operate buttons. In three months, he read more than 10 books, covering theology, literature, horror novels, and more, one of which was Shi Tiesheng's "Me and the Temple of Earth".

As a writer with a similar history of paralysis, Feng Jinyuan read about Shi Tiesheng's thoughts on life and death, as well as fate, in his book, which resonated with him in many aspects. "Similar moods and lives, such reading makes me feel 'fed and clothed', but in fact, life is not that painful."

Feng Jinyuan revealed that he is also a reader of Pengpai News, often reading the stories of characters in Pengpai News, especially paying attention to the progress of "AI reviving loved ones" and the gradually frozen person "Cai Lei". "If conditions permit, I would also like to try using AI to 'resurrect' loved ones. But sometimes I am also thinking that such AI can mimic the voice and appearance of family members, but cannot replicate their hearts and thoughts. From this perspective, I actually have some resistance to such technology."

For the gradually frozen person Cai Lei, Feng Jinyuan lamented his greatness. "He is a very difficult person. His career was so successful in the first half of his life, and he has put in a lot of effort to reach such a high level of career. It is difficult to imagine how he would accept this reality when he found out that he was sick, after all, such a disease is a difficult suffering for anyone to accept." Compared to his own life, he thinks, "I knew I had this disease not long after I was born, and I have been accepting this reality since childhood. Perhaps, this kind of 'acceptance' and 'adaptation' come simpler."

What impressed him even more was that Cai Lei still did his best to benefit more similar patients and promote human progress in the diagnosis and treatment of ALS under such disease conditions. "It was like entering a 'Silent Ridge', realizing that there was no way ahead. Faced with a deep cliff, he still wanted to take a path that no one had walked and find a bright path. He said, 'It's really not easy to shoot the last bullet.' His wife is also great, always supporting her husband in finding a path of light, '" Feng Jinyuan said.

句子分析1：

 He had a three month long bedsore, a palm sized wound infected and purulent, and a continuous high fever every day

句子成分分析：(划分说明)  

He had a three month long bedsore,
a palm sized wound infected and purulent,
and a continuous high fever (every day)

句子语法结构详解：

(wound 为 wind 的过去分词。)

* had 为谓语，采用一般过去时。
* sized 为谓语，采用一般过去时。
* wound 为过去分词作定语
* he 为人称代词主格。a 为不定冠词。

相关语法知识:
   时态
   过去分词
   并列连词
   人称代词

句子相关词汇解释：

Vocabulary:

句子语法错误检查：

(未发现错误)

句子分析2：

 I knew I had this disease not long after I was born, and I have been accepting this reality since childhood. 

句子成分分析：(划分说明) 

"I knew | I had this disease || not long after I was born, || and I have been accepting this reality [since childhood].

句子语法结构详解：

(knew 为 know 的过去式。)

* knew 为谓语，采用一般过去时。
* 第2个 I 开头为宾语从句，引导词 that 被省略。
* had 为谓语，采用一般过去时。
* not long after 引导状语从句。
* born 为谓语，采用一般过去时和被动语态。
* and 为并列连词，连接并列句。
* accepting 为谓语，采用现在完成进行时。
* I 为人称代词主格。was, have, been 为助动词。

相关语法知识:
   时态
   宾语从句
   状语从句
   被动语态
   并列连词
   人称代词 | 助动词

句子相关词汇解释：

Phrase:

Vocabulary:

句子语法错误检查：

(未发现错误)

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